8th May 2017 – International Thalassaemia Day Message

TASCS AUSTRALIA VISITS JULIA BANKS
March 31, 2017
Living with Thalassemia: Robert’s Story
May 10, 2017

TASCS Australia would like to announce on this important day for all thalassaemia patients, that our Society still seeks to endeavour to continue advocating for the needs and concerns of people affected by haemoglobinopathies, and to continue our awareness/education program. To this effect, and in recognizing the changing challenges that haemoglobinopathies present to Australia, our Society will be designating a national day of recognition for both thalassaemia and sickle cell anaemia, together with all related conditions. Further announcements will be made regarding this day, and any events/programs which will be planned in conjunction with this. We thank all our supporters and encourage all patients and Australians to become participating members of our Society, and advocate the cause and interests of people affected by haemoglobinopathies. A point we need to highlight, is that haemoglobinopathies like thalassaemia and sickle cell are one of the most common chronic genetic conditions in the world. The WHO conservatively estimates that 5-7% of the world’s population are carriers, and predicts that percentage will grow. Certainly a sobering thought for us all and the need for awareness days like today.

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